Showing posts with label Ds Mama. Show all posts
Showing posts with label Ds Mama. Show all posts

Sunday, August 5, 2012

Happy Heart Day, Isabella!




While pregnant with Wes, I made many connections in the Facebook and Baby Center Down syndrome communities. Some parents were veterans of Down syndrome, while others were young, fearfully excited mom's to be just like me!

Brittany was one of those fearfully excited mom's that I met on a Baby Center board in January. She shared the news of her prenatal diagnosis how she found out that her daughter, Isabella, had Down syndrome. I was so drawn to Brittany, her story and her love for her unborn daughter, I just had to reach out to her. 

Expecting a child with special needs can be a scary experience. Scary because of the intense love for that child and the need to do anything possibly for that child to thrive. The first question that arises is, "Is my baby healthy." That question out trumps any fears of future plans you may have for your child. {You soon learn that these "plans" cause unrealistic expectations for ANY child. Damaging.}  During our pregnancies, we both had our emotional ups and downs regarding the health of our children. Though we were both ever exciting about becoming moms (#2 for Brittany), we were still scared of the unknown. The fears of heart surgery for Isabella, and possible surgery due to Hirschsprung's for Wes (he ended up not needing), kept us nervous and on our toes. However nervous we both were, it was beyond comforting knowing that we were just one message away from each other. 

The morning that I had Wes, it was a flutter of updates and messages to family and friends. I was excited enough that Wes shared the same birthday as my dear friend Erin, momma to Grady, but then I got news that Brittany gave birth to Isabella that same day! Let me just say that April 23rd is quite the lucky day for us all!

This leads us to where we are today...

Little Miss Isabella had her heart surgery on Friday. Wes wanted Isabella to know that he was thinking about her, so he asked me to help him write her a message. {I think Wes has a little crush - she sure is a beautiful little girl!}

To keep up on Brittany and Isabella, check out her blog. She's been updating us on Isabella's recovery like a mad woman... like a momma in love with her little girl...

Thursday, August 2, 2012

Friends, Tiny and Tall

This past weekend I had the opportunity to catch up with my {new and dear} friend, Erin. Erin and I are both graduates from the same high school and practically grew up next door to one another, but never "hung out" as teens. Not until I learned about Wes's diagnosis did I reach out to Erin {though I stalked her blog like crazy!}

Here are some cute pics from this weekend....

Erin, Wes & Baby June-Bug


Me and Grady

Love <3 !
Photo credits to Erin Witkowski and her lovely iPhone!

We've got a whole lotta love going on here! 
{MIA from the pics are Paul (daddo-o) & Mason (Grady's big bro)

Thursday, June 21, 2012

Eat a banana split tonight - for Ryan

A fellow mama in the Down syndrome community is losing her 21 month old child to a heart defect, regardless of the amount of surgeries he's had since birth. This family doesn't need cards, flowers or gifts... they just want you to eat a banana split tonight with your kids in honor of Ryan. They wish for you to make memories with your children, like they are striving to do every day with their kids.

So please, even if you can't tonight, please have a banana split with your kids soon. Since Wes is so itty bitty, I will be hosting a banana split party with my nephews while we're on vacation. I can't wait to surprise them with this and make a lasting memory for us as a family.

If you do end up making that banana split, can you post it on here or email me with a picture of you and your family enjoying your banana split? I want to send it to Diane.

Thank you!

Banana Splits for Ryan